Dear Editor:
In the last 20 years, the number of children with autism and related conditions in New Jersey has skyrocketed. While schools are working to meet the needs of these children, little attention is paid to the needs of adults. After the age of 21, those with autism are no longer entitled to free, effective services. Families often bear the burden of arranging care, transportation, and supports. It is expensive and exhausting.
Because autism is a spectrum, the outcomes range from college and career, to those who will need a lifetime of support. Sadly, few young people with autism are connected to the supports they will need as adults before they exit school.
In March, hundreds of thousands of children will take assessments to measure their progress toward readiness for 21st Century Life. New Jersey educators and policy makers must not forget about those with more severe disabilities. We must go beyond standardized testing, taking a more active role in helping to ensure that families with a son or daughter with autism know about the adult service system, and can access the services and supports they need for an independent life as an adult.
For more information, please contact: The Phoenix Center (973) 542-0743.
Geraldine Gibbia
Co-Founder and Executive Director